Spina Bifida Occulta

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(my lovely sacrum)

So I’m not sure if I’ve mentioned this before or not. I have spina bifida occulta (SBO) along with everything else. If I haven’t mentioned it before, it’s probably because I have no idea what that means for me. As is often my luck, when I get different medical tests, the unexpected shows up. So on a series of neck and lumbar xrays, I learned that I have spina bifida occulta of my S1 (I also have bilateral extra ribs on my C7…I told mother she birthed a freak…). I was told it’s just an inconsequential finding, but others have shared different experiences. I haven’t had an MRI of it and that annoys me a little. I like to know everything that is going on with my body. Simply being told that I have SBO isn’t enough. I want to make sure it’s not hiding anything from me, like a tethered cord. Also, having EDS as well, it’s very hard to tell what’s caused by the EDS, by the SBO, or is just a random ache/pain. If anyone out there reading this blog (all five of you at this point šŸ˜€ ) have any experience with SBO educate me please!

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2 thoughts on “Spina Bifida Occulta

  1. I have recently learned I have EDS and that my daughters have it as well. Your not alone. My daughter has SBO that was found during an appointment with the genetic department. Now that we are diagnosed we have not returned. I don’t know if that is common, but it is what I face daily.

    • I don’t know much about my SBO :-\ I do wish I could get an MRI of it though just to figure out where exactly the lesion is and what it might mean for pregnancies (and epidurals o.O ).

      Are you a biologist?? I’m working towards my PhD in it šŸ™‚

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